Functional Neurological Disorder (FND) Resources

Living with Functional Neurological Disorder (FND) can present many challenges, but you’re not alone. Below are some helpful resources and tools to support you or your loved ones in managing the condition. Whether you’re looking for information, products, or community support, we’re here to help guide you every step of the way.

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What is FND?

Functional Neurological Disorder (FND) is a condition where there is a problem with how the brain and body send and receive signals, affecting movement, sensation, and more. Symptoms may include seizures, muscle weakness, speech issues, and balance problems. FND is real and treatable, but understanding it can help you better manage symptoms and advocate for your care.

Learn more about FND here (https://fndhope.org/fnd-guide/)

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Living with FND: Tips and Guidance

• Managing Daily Life: Learn how to balance your day with rest and activities. Managing stress and recognizing triggers can make a big difference in your symptoms.
• Coping Strategies: From breathing exercises to mindfulness, find techniques that can help you stay grounded when symptoms flare up.
• Building a Support System: Connecting with others who understand what you're going through can be incredibly empowering. Discover ways to build your support system (https://fndhope.org/what-we-do/)

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Treatment and Management Options

• Therapies for FND: Many people find relief through a combination of physical therapy, occupational therapy, and psychological support, such as Cognitive Behavioral Therapy (CBT). Read about treatment options (https://www.fndhope.org/living-with-fnd/treatment-options/)
• Medications & Alternative Treatments: Learn about different medications and alternative therapies like acupuncture, relaxation techniques, and mindfulness.
• How to Find a Specialist: Finding the right healthcare provider is key. Here's a guide to locating neurologists and therapists who specialize in FND. Learn more here (https://www.neurosymptoms.org/en_GB/symptoms/find-help-with-your-symptoms/)

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Support and Community

• Online Support Groups: Join an online support group and connect with others who are navigating life with FND. You can share your experiences, ask questions, and find comfort in knowing others are walking a similar path. Join a support group through FND Hope (https://www.fndhope.org/support/)
• Mental Health Resources: Managing FND can take a toll on your mental health. If you need someone to talk to, consider reaching out to organizations like the National Suicide Prevention Lifeline at 1-800-273-8255 or via Crisis Text Line (https://www.crisistextline.org/) by texting HOME to 741741.
• FND Awareness Organizations: Organizations like FND Hope and The Functional Neurological Disorder Society are at the forefront of research, awareness, and support. Learn more from FND Hope (https://www.fndhope.org/)

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Downloadable Tools

• Symptom Tracker: Track your symptoms daily to identify patterns and triggers. You can download our free printable tracker to help you communicate with your healthcare provider. Download here (https://www.fndhope.org/living-with-fnd/fnd-symptom-tracker/)
• FND Fact Sheets: Share these easy-to-understand fact sheets with family, friends, or your doctor to raise awareness and understanding about FND. Download fact sheets from FND Hope (https://www.fndhope.org/living-with-fnd/fnd-patient-resources/)
• Daily Routine Planner: Our customizable planner helps you organize your day around your energy levels, balancing activity with rest to reduce flare-ups. Download here.

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Recommended Products for FND Management

• Weighted Blankets: Calm anxiety and stress with a soothing weighted blanket.
• Noise-Canceling Headphones: Help manage sensory overload by creating a quiet, controlled environment.
• CBD Products: Manage pain and stiffness with CBD oils, creams, or gummies (check local laws and platform restrictions regarding CBD). View recommended products.

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Videos and Tutorials

• Understanding FND: Watch this video series to learn more about FND, how it affects the brain, and how you can manage it. Watch FND Hope’s video resources here (https://www.fndhope.org/resources/videos/)
• Gentle Exercises for FND: Explore exercises that can help maintain mobility and reduce stiffness, tailored to those with FND. Watch exercise videos here (https://www.fndhope.org/resources/videos/)
• Personal Stories: Hear from others living with FND as they share their challenges and triumphs. Watch personal stories here (https://www.fndhope.org/resources/personal-stories/)

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Caregiver and Family Resources

• Supporting Someone with FND: Find practical advice on how to care for and support someone living with FND, whether you're a family member, friend, or caregiver. Learn more from FND Hope’s guide for caregivers (https://www.fndhope.org/support/family-carer/)
• Caring for Yourself as a Caregiver: Taking care of yourself is just as important. Here's how caregivers can avoid burnout and maintain their own well-being. Read more.
• Parenting with FND: Tips for managing parenting responsibilities while coping with FND symptoms. Read more.

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Advocacy and Legal Resources

• Disability Benefits: Get advice on applying for disability benefits and documenting symptoms to support your case. Read about disability and FND here (https://www.fndhope.org/living-with-fnd/applying-for-disability-benefits/)
• Self-Advocacy: Learn how to advocate for yourself with healthcare providers, employers, and loved ones to get the support and accommodations you need. Find tips for self-advocacy here (https://www.neurosymptoms.org/en_GB/self-help/self-help-and-advocacy/)

Staying Updated with FND Research

New developments in FND research are happening all the time. Keeping yourself informed about the latest findings and treatments can make a difference in how you manage the condition. Explore the resources below to stay connected with the most up-to-date information:

• FND Hope Research Page: Stay on top of the latest FND research initiatives and results. Visit the FND Hope research page here (https://www.fndhope.org/fnd-research/)
• NeuroSymptoms Research Updates: Find ongoing research studies and updates that focus on the neurological aspects of FND. View research studies here (https://www.neurosymptoms.org/en_GB/research/research/)

Join Our Community

Connecting with others who understand your journey can be incredibly beneficial. Consider joining support groups or forums where you can share experiences, ask questions, and find encouragement:

• FND Hope Community: A supportive online space for individuals living with FND and their families. Join the FND Hope Community here (https://www.fndhope.org/community/)
• Stronger Together: Chronic Illness & Pain Support Group: A community for individuals dealing with chronic illness and pain, where you can find support and understanding. Join our group here (https://www.facebook.com/groups/strongertogetherchronicillnessandpainsupportgroup)
• Facebook Groups: Look for other FND-specific groups on Facebook where members share insights and offer support. Search for groups like "FND Awareness" or "FND Support Group."

Always remember that you are not alone in this journey. Reach out, connect, and find the support you deserve.

By providing these resources, we hope to empower you with the knowledge and tools you need to manage Functional Neurological Disorder. Remember, you are not alone in this journey, and support is always available.

Contact us if you have any questions or need further assistance.